Writing honestly through every part of our journey
A space where love, loss, and motherhood come together
Wait. What? Preschool?
This morning during Clifford’s therapy session, his teacher casually mentioned, “Next year when Clifford starts preschool…”
And I cried. Wait. What? Preschool? Like, go to school-school? Without me??
Let’s catch up…
It’s been a long time since I’ve written a blog post — I think the last one was before Clifford even came home from the NICU. A lot has happened since then. Time for blogging slowly disappeared as our days filled with caring for Clifford. Much time has passed, and to be honest, I had hoped there wouldn’t be much to write about at this point. We’ve overcome so much, yet it still feels like we’re in the thick of it. I’ll get to that.
Smiles, stability, and coming home
It's hard to believe how quickly time has passed since our last update. I want to briefly touch on a couple of events from February before sharing our latest and hopeful news. Following a couple of challenging nights that required emergency trach changes, Cliff's condition stabilized, and he also underwent successful laser eye surgery. Whew! Hopefully the last procedure for a while.
168 Day NICU Update
Sharing a positive update on Mr. Clifford's journey. After some challenges finding the right vent settings, we've had over three weeks of stability – a big step toward reducing his support! With fewer vent adjustments, Clifford has been able to rest, grow, and make developmental progress. He's now more resilient, handling life transitions with less stress, moving and interacting without as significant desaturation.
145 Day NICU Update
I can’t believe it’s already been a month since Clifford’s tracheostomy. While he has recovered well, the last few weeks have still been tough. We had high hopes that getting the trach would give Cliff the support he needed to go home, but he showed us he just isn’t ready yet. Although he is in a much better place than he was a month ago thanks to the trach, his lungs and tracheamalacia are too severe to manage outside of the hospital at this time.