Sharing a positive update on Mr. Clifford's journey. After some challenges finding the right vent settings, we've had over three weeks of stability – a big step toward reducing his support! With fewer vent adjustments, Clifford has been able to rest, grow, and make developmental progress. He's now more resilient, handling life transitions with less stress, moving and interacting without as significant desaturation.

I can’t believe it’s already been a month since Clifford’s tracheostomy. While he has recovered well, the last few weeks have still been tough. We had high hopes that getting the trach would give Cliff the support he needed to go home, but he showed us he just isn’t ready yet. Although he is in a much better place than he was a month ago thanks to the trach, his lungs and tracheamalacia are too severe to manage outside of the hospital at this time.

As you know from my last post, we've been approaching a pivotal point in Clifford's journey. Over the last week, he started to have more episodes where his oxygen saturation would drop. This prompted the doctors to conduct a bronchoscopy, a procedure where they insert a small camera down Clifford's throat to see what exactly is happening during these episodes.